ABOUT US

RUSSIAN COMMITTEE FOR TREATMENT AND RESEARCH IN MULTIPLE SCLEROSIS

ABOUT US

The Russian Committee for Researchers of Multiple Sclerosis (ROKIRS or RUCTRIMS) was created in 2010 with the support of the All-Russian Society of Neurologists, and was officially registered in 2012.

COMPOSITION OF THE COMMITTEE

Spirin Nikolay Nikolaevich

The President of РОКИРС/RUCTRIMS

MD, Professor, Head of the Department of Nervous Diseases with Medical Genetics and Neurosurgery, SBEE HPE "Yaroslavl State Medical University" of the Ministry of Health of Russia, Head of the Regional Scientific and Educational Center for Demyelinating Diseases, member of the ECTRIMS Council

Scientific event coordinator

Boyko Alexey Nikolaevich

Vice President of РОКИРС/ RUCTRIMS

MD, Professor of the Department of Neurology, Neurosurgery and Medical Genetics, SBEI HPE Russian National Research Medical University. N.I. Pirogov of the Ministry of Health of Russia

Vlasov Yan Vladimirovich

Vice President of РОКИРС/ RUCTRIMS

MD, Professor of the Department of Neurology and Neurosurgery, Samara State Medical University of the Ministry of Health of the Russian Federation

President of the All-Russian Public Organization of Disabled Persons with MS

Co-Chairman of the All-Russian Union of Public Associations of Patients

Expert consultant of the UN Economic and Social Council

Chairman of the Public Council for the Protection of Patients' Rights under the Federal Service for Surveillance in Healthcare

Member of the Public Council under the Ministry of Health of the Russian Federation

Member of the Ethics Council under the Ministry of Health of the Russian Federation

Member of the Expert Council under the FAS on the development of competition in the social sphere and healthcare

Member of the Expert Council under the Government of the Russian Federation

Member of the Board of Trustees in the social sphere under the Deputy Prime Minister of the Russian Federation O.Yu. golodets

Permanent Representative of the Russian Federation to the World Association of MS (IFMS), Permanent Representative of the Russian Federation to the European Platform for Disabled People with MS

Interaction with government authorities and patient organizations

Stolyarov Igor Dmitrievich

Vice President of РОКИРС/ RUCTRIMS

MD, Professor, Head of the Laboratory, FGBUN Institute of the Human Brain. N.P. Bekhtereva RAS

Research coordinator

Schmidt Tatiana Evgenievna

Vice President of РОКИРС/ RUCTRIMS

PhD of Medical Sciences, Associate Professor of the Department of Nervous Diseases and Neurosurgery, First Russian National Research Medical University. N.I. Pirogov of the Ministry of Health of Russia

Clinical and Advisory Lines Coordinator

Bykova Olga Vladimirovna

MD, Head of the Research Department of the Scientific and Practical Center for Child Psychoneurology of the Moscow Health Department

Boyko Olga Vladimirovna

Secretary of РОКИРС/RUCTRIMS

PhD of Medical Sciences, employee of the Department of Neurology, Neurosurgery and Medical Genetics, SBEI VPO Russian National Research Medical University named after N.I. N.I. Pirogov of the Ministry of Health of Russia

Petrov Andrey Mikhailovich

Secretary of РОКИРС/RUCTRIMS

PhD of Medical Sciences, Senior Research Fellow, FGBUN Institute of the Human Brain. N.P. Bekhtereva RAS

Sivertseva Stella Anatolievna

Secretary of РОКИРС/RUCTRIMS

MD, Head of the Tyumen Regional Center for Multiple Sclerosis

Stoyda Natalia Igorevna

Auditor of РОКИРС/RUCTRIMS

PhD of Medical Sciences, employee of the VI neurological department of the Federal State Budgetary Scientific Institution "Scientific Center of Neurology"

Lozovskaya Irina Simonovna

Director of РОКИРС/RUCTRIMS

Currently, significant progress has been made in understanding the patterns of development of multiple sclerosis (MS) and other demyelinating diseases, the etiology and pathogenetic mechanisms of their development. Achievements in experimental neurology, neurophysiology, clinical immunology and genetics, standardization of diagnostic approaches, active introduction into everyday practice of highly informative instrumental methods for examining patients, including magnetic resonance imaging (MRI), accumulation and systematization of vast clinical experience, have made it possible to open a new era in the treatment of this severe diseases, significantly improving the prognosis and improving the quality of life of patients. Currently, beta-interferons and glatiramer acetate remain the first-choice methods of pathogenetic treatment of MS from the group of drugs that change the course of multiple sclerosis (MRMS). Domestic biosimilars of original drugs are being actively introduced, which increases the availability of this expensive long-term treatment. There are new drugs registered in Russia that have significantly expanded the capabilities of neurologists in the treatment of various forms of demyelinating pathology (fingolimod, natalizumab, teriflunomide, lachinimod, and others). Significantly expanded the possibilities of symptomatic treatment and rehabilitation.

All this requires neurologists dealing with this problem to have additional knowledge in various fields necessary for early differential diagnosis and selection of individual therapy. Therefore, in all regions of the world, professional communities of MS researchers have been organized, working in close cooperation with professional organizations of neurologists - neurological societies. The European and North American committees already have many years of experience, such committees have been created in Asia, Australia and Oceania, in Central and South America (ECTRIMS, ACTRIMS, PACTRIMS and LACTRIMS), committees in individual countries. The RUSSIAN COMMITTEE FOR TREATMENT AND RESEARCH IN MULTIPLE SCLEROSIS (RUCTRIMS) was established in 2010 with the support of the All-Russian Society of Neurologists, officially registered in 2012. In 2013, from September 11 to 13, the First Congress of RUCTRIMS "Demyelinating diseases and neuroinfections, issues of diagnosis and therapy" was held in Kazan, organized by the All-Russian Society of Neurologists and the public organization of multiple sclerosis (MS) researchers. This congress, held in Kazan, was attended by 450 neurologists, including more than 50 representatives of foreign countries - world famous neurologists, heads of MS clinics from Germany, Italy, Spain, France, Great Britain, Switzerland, Turkey, Iran, USA, Canada and other countries. Experts in the field of MS made presentations to the participants of the congress. Of great importance was the educational course held on the first day of the congress and dedicated to the memory of two of the largest neurologists, authors of the diagnostic criteria for MS - Charles Poser and Ina McDonald. Both of these well-known neurologists have repeatedly come to Russia, delivered lectures, took part in the work of All-Russian congresses and conferences. Therefore, the educational course of the First RUCTRIMS Congress in Kazan was held in memory of these famous neurologists.

In 2012 and 2014, meetings of the RUCTRIMS Executive Committee were held in St. Petersburg and Yaroslavl, which were the basis for holding thematic conferences on this issue. In 2015, the Second RUCTRIMS Congress was held, dedicated to the memory of Professor Donald Paty (1936-2004). The congress was attended by 30 leading neurologists, experts in MS, from 16 countries of the world and more than 500 neurologists from Russia.

We invite all neurologists to actively participate in the work of RUCTRIMS!

Alexey Boyko

Vice President of RUCTRIMS, Professor

OUR CONTACTS

Mail: info@ructrims.org

119421, building 105/4, Leninskyi ave., Moscow, Russia